Title: The DECIDE-ICD trial
Summary: Strong scientific evidence supports the idea that shared decision making can be achieved through the use of patient decision aids, however, many attempts at real-world implementation have not been successful largely due to a focus on low-risk decisions in primary care where clinicians are either too busy or the stakes are too low for the decision aid to be perceived as valuable. This team’s overall goal is to assess real-world effectiveness (Aim 1) and implementation (Aim 2) of patient decision aids for high-risk decisions using the implantable cardioverter-defibrillator (ICD) as a model. By simultaneously exploring effectiveness and implementation, this project will provide pragmatic information that will inform a growing national agenda to better involve patients in their health care via shared decision making.
Award Number: 1R01HL136403
Project Period: 04/01/2017-03/31/2022
Making about Intracranial Pressure Monitoring in Children with TBI
Summary: The decision to place an ICP monitor in a child with severe TBI is
complex, poorly understood, and has the potential to strongly affect patient
outcomes. This program is innovative because it applies rigorous qualitative and
quantitative methods to deepen our understanding of this important decision and
to inform development of an intervention to improve patient outcomes.
Award Number: IHEA 2017000068
Project Period: 07/12/2017-06/30/2019
Title: A Multicenter Trial of a Shared Decision Support Intervention for Patients and their Caregivers Offered Destination Therapy for End-Stage Heart Failure: The DECIDE-LVAD Trial
Summary: With advances in medical technology, older people and those with chronic diseases are increasingly offered major surgeries and devices like the left ventricular assist device (LVAD). Using feedback from patients, caregivers, doctors, surgeons, and nurses, we made a paper and video decision aid to help people offered OT LVAD make this most difficult of decisions. We now want to evaluate how our OT LVAD decision aid works in the real world. In six hospitals accross the United States, we will:
1. Explore how often the decision aid is used among eligible patients.
2. Test how well the decision aids and training improve the quality of patient and caregiver decisions.
3. Measure how well doctors, nurses, and hospitals adopt, implement, and continue to use the decision aids and training.
This trail is now in peer-review.
Award Number: CDR-1310-06999
Project Period: 12/01/2017-02/28/2019
Title: Using Novel Shared Decision Making to Help Frail & High-Risk Patients with Aortic Stenosis Make Goal-Concordant Decisions
Summary: The purpose of this project is to build a model of a decision-making intervention in which delivery of education and decision-making are inverted. Just as palliative care aims to be patient-centered, these concepts have been lauded as “learner-centered paradigms”19 when applied to classroom education. This is an appropriate comparison, as the issues addressed in traditional education are remarkably similar to current challenges in patient decision support.
Funder: PCRC - NIH/NINR
Award Number: PCRCPilot2017-08 / 5U24NR014637
Project Period: 07/01/2017-06/30/2018