Health Indicators Story Map - Colorado Health Observation Regional Data Service (CHORDS)
Grant: Multiple Funders
A How-To Guide
Grant: 1R18HS022648-01, R01AI114903, R01CA187707
This standard for
compensating youth, family, and patient partners is useful for research teams
who have committed to engaging stakeholders as research team members, but do
not have a good guide to help them budget appropriately. This guide
standardizes the compensation, reimbursement, and budgeting for all aspects of
engaging youth, family, and patient partners by discussing levels of
engagement, research cycle budgeting, a sample budget, and a step-by-step
method for determining reimbursement during the research cycle. This guide can also be found at www.cyshcnet.org.
standardizes compensation and reimbursement for youth and family partners who
are engaged as members of a research team. It helps youth and families
understand how compensation may be determined by the principal investigator,
what expenses are eligible for reimbursement, roles and responsibilities that
may be assigned, and presents a glossary of research terms that youth and
family partners should become familiar with. The guide also helps youth and
family partners be proactive in advocating for appropriate orientation to the
project that they work on. This guide can also be found at www.cyshcnet.org.
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