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2012 LEADS Scholary Project

OUr LEADS Scholars




 Alzheimer’s Association - “Family Caregiver Enhanced Care Transitions Intervention Protocol”

Kelly Wagner
LEADS Faculty Mentor: Cathy Battaglia                    Organization Mentor:   Cheryl Parish
8-week Project Goals:
To complete 10 one-on-one sessions with family caregivers in the community (recruited from the Alzheimer’s Association’s caregiver support group) and obtain feedback on the FCAT’s organization, wording and scripting.  To give the assessment to 25-50 caregivers and use their responses to evaluate the tool.  Would like to publish a paper detailing our findings and hopefully, the uses for the FCAT.
Very Brief Background or Rationale of Project:
The FCAT (Family Caregiver Assessment Tool) is newly developed, yet untested tool that is a potential new way to assess the skill level of family caregivers.  The importance of family caregivers to the health and wellbeing of the growing older adult population is commonly overlooked and this tool would provide an objective view of a caregiver’s skill set.  Ideally, the FCAT could be used to both track a caregiver’s progress over time, as well as determine the ability of the caregiver to provide adequate care to their family member after discharge from the hospital.  We need to evaluate the tool to ensure its validity and specificity, as well as identify any potential bias.

 Child Health Advocacy Institute (CHAI) - “Bikes for Life”

Margaret Saccomano
LEADS Faculty Mentor: Dr. Shale Wong                                           Organization Mentor: Laura Retzer
 8-week Project Goals: 
It is clear that childhood obesity has become a large problem in the United States. This project is of significant importance because many of our behavioral habits are imprinted during childhood. Most significantly, with respect to behaviors involving health, the habits we adapt as adults are most often formed during early developmental years.  It is the aim of this project to replace the overwhelmingly unhealthy habits of our country’s youth with healthy alternatives. I became interested in this project because it brought together a number of different aspects of medicine.
There are a number of different types of events associated with this project:
1.      Enrollment events
2.      Bike distribution events
3.      Bike Rodeos
4.      Promotional events
5.      Follow up appointments
Very Brief Background or Rationale of Project: 
In summary, monitoring of the families and children throughout the process aims to foster repeated exposure to this information and, ideally, a change in behavioral habits as a family unit. The ultimate product that I plan to take away from this work is, essentially, a qualitative review of the project. From this work is, essentially, a qualitative review of the project. I hope to examine what aspects of the project were successful, what counseling/teaching techniques the participants and their families were most responsive to and how responsive the families were in general to the interventions among other observations. As well, if possible I hope to collect data on how quantitatively well the program worked (i.e., did the children become measurably healthier in terms of BMI).

 The Children's Hospital Medical Legal Partnership - “Characterizing the Medical-Legal Partnership situation in Metro Denver”

Matthew Miller
LEADS Faculty Mentor:  Jeremy Long                                                    Organization Mentor: David Fox
8-week Project Goals:
Establishing the need for continuance and expansion of a medical-legal partnership.
The goals of this project are twofold:  First, I aim to collect data that shows that the MLP at TCH is indeed effective.  Second, I will conduct a needs assessment showing that MLPs are needed at Anschutz Inpatient (AIP), Denver Health (DH), and Salud Clinic. 

Very Brief Background or Rationale of Project: 
The need for medical-legal partnerships has recently been well defined as the social determinants of health have begun to be elucidated. The classic example is of an asthmatic child whose disease can’t resolve because his landlord refuses to take care of the mold in his apartment. A call from a doctor is often blown off, whereas a call from a lawyer gets results (A Case for Including Lawyers on the Care Team. Physician Executive. March 2011. 37(2):34-8. Robert Pettignano, Sylvia Caley, Lisa Bliss.) Other health problems are heavily affected by environment, including access to food, proper education, etc. Additionally, lawyers may help with enrolling people in Medicaid/Medicare so that they have easier access to care. (Medical-Legal Partnerships: Transforming Primary Care By Addressing the Legal Needs of Vulnerable Populations. Health Affairs. September 2010; 29(9): 1697-1705. Megan Sandel, Mark Hansen, Robert Kahn, Ellen Lawton, Edward Paul, Victoria Parker, Samantha Morton and Barry Zuckerman.) The Children's Hospital has run a medical-legal partnership for several years.  However, while quite a bit of pilot data has been done assessing the need for a medical-legal partnership at TCH, nothing has yet been done to assess the success of this program.  Proof of success is critical for obtaining continued funding and also for expansion to other sites. 

 CoverColorado - “Fears, Myths, and Urban Legends: Assessing Member Understanding of the Effects of PPACA on CoverColorado”

Melissa O’Meara
LEADS Faculty Mentor: Christine Gilroy                        Organization Mentor: Suzanne Bragg-Gamble
8 week project goals: 
The goals will be assessed using focus groups from various regions in the state. The current thought is that there will be at least four (4) focus groups of between 10-20 people in the following locations: Denver, Grand Junction, Glenwood Springs, and Alamosa/Sterling. Locations and exact numbers may be subject to change based on facility availability.
Very Brief Background or Rationale of Project: 
CoverColorado is the state’s high risk pool. It provides individual coverage to people who do not have access to employer sponsored health insurance, and who have been denied individual coverage due to a pre-existing condition. In fall of 2013, the Colorado Exchange will begin selling individual coverage without a pre-existing condition clause with an effective date of 1/1/2014. Dependent on the United States Supreme Court’s ruling in July 2012, CoverColorado will be eliminated as private plans without a pre-existing condition clause become available.
CoverColorado currently has 13,000 members. If the Supreme Court upholds the pre-existing condition portion of the Patient Protection and Affordable Care Act (PPACA), then all of these members will have to use the Colorado HealthCare Exchange to enroll in private insurance in 2013. In order to proper prepare their members, CoverColorado needs to access the member’s current understanding of PPACA and CoverColorado needs an efficient, cost effective way of communicating to the members. To that end, this project will assess member communication preferences, and use focus groups to assess member understanding of PPACA.

 Colorado Coalition for the Homeless (CCH) - “Trauma Informed Care: The effectiveness of screening homeless patients at CCH and Adverse Childhood Experiences: Applying the ACE scare in the context of homelessness”

Anna Christenson
LEADS Faculty Mentor:                                                                          Organization Mentor:   Rich Jones
8-week Project Goals: 
CCH has been screening their patients for trauma history as part of their intake paperwork.  This universal screening process is designed to identify patients who may need additional support or unique accommodations in their care plan.  The implementation of a trauma informed care screening process requires follow-up evaluations to determine how patients feel about the process and its usefulness for providers.  My role will be to conduct a study on their trauma screening, both with a patient survey and focus groups with clinicians. 
My role will be to assist with communicating with legislators about Medicaid and other policy issues.  We are still figuring out what policy topics I will work on. 
Is to partner with a MSW student to research the Adverse Childhood Experience (ACE) scores of the homeless population served by CCH.  We may end up comparing the ACE score with the “Life Events Checklist” (LEC) to see which is more predictive of homelessness
Very Brief Background or Rationale of Project:  
The outcome of the project regarding trauma informed care is to assess whether this universal screening process is effective with the CCH client population.  This information will be filtered into their clinical care protocols.  Also, the ACE/LEC study is intended to add to the volume of literature regarding risk factors for homelessness, especially those that occur during childhood.  Lastly, any work that I do to assist CCH in communicating with legislators about homelessness in Colorado and relevant legislation will be intended to advocate for the underserved.



 Colorado Rural Health Centers - “Colorado Health Story”

Luke Swank
LEADS Faculty Mentor: Cathy Battaglia                                     Organization Mentor:   Hope Wisneski
8-week Project Goals: 
Everyone has a health story. Sharing that story connects others and facilitates conversation about health; what's working, what is not. On this basis, our health system can be improved.
Very Brief Background or Rationale of Project: 
The project will benefit the targeted communities that will participate. Hopefully, conversation is generated and will infinitely affect the majority of Colorado. The people of the state need to have a say in their health outcomes. Politicians will listen more as the voice grows louder. Change can then precipitate. 
Toolkits for clinical in Morgan County on Refugee Care as e=well as Gathering Health Stories from community members there.

 JFK Partners - “Preliminary Evaluation of the Children With Autism (CWA) waiver”

Joel Roberts
LEADS Faculty Mentor:  Rita Lee                                               Organization Mentor: Corrie Rosenberg
8-week project goals:
-interview key informants, research survey creating, and create the survey
-submit IRB
-continue to research autism, autism treatments, and the waiver
-mail letters of invitation to families through JFK requesting they fill out the survey
-meet with families and assist with completing the survey
-decide on the method of data analysis and analyze the data
-create a document (article, handout, etc) to present the data to the desired parties
Brief Background or Rationale of Project
design a survey to gather the information desired by JFK Partners and any additional questions that I desire for an MSA project
-deliver surveys to 15-25 families and be present for clarification and questions
-analyze the data and make conclusions regarding the desired outcomes (ie overall satisfaction, resources and providers used, progress of the child, time on the program, etc)
-if time, refine survey to be used with all families that have participated in the waiver,  write results in an article and attempt to publish

 JFK Partners Colorado Mentoring Program - “Colorado Mentoring Project” - Parent to Parent Mentoring Program"

Rebecca Thompson
CU LEADS Faculty Mentor: Rite Lee                                             Organization Mentor: Corry Robinson
8-week Project Goals:
 The P2P mentoring project aims to improve family well-being and coping strategies after receiving a diagnosis of autism for their child via the use of mentoring from more experienced parents of children with autism.
Very Brief Background or Rationale of Project:
To learn about a parent/family’s experiences immediately after receiving a diagnosis of autism for their child.
1)            write a script for the focus group that will be included in an amendment to a current IRB application allowing for the conduction of focus groups
2)            recruit parents currently signed up to undergo in mentor training to participate in a focus group
3)            conduct a series of focus groups this summer to learn about these parents’ experiences with their children’s autism diagnoses
4)            analyze the data using qualitative methods.
5)            report back to the project leads to help them to direct the parent mentoring program to the specific needs of these families.

 Laboratory to Combat Human Trafficking - “Colorado Community Needs Assessment Project: Health Care Providers and Human Trafficking”

Aliana Critchlow
LEADS Faculty Mentor: Cathy Battaglia                                   Organization Mentor: AJ Alejano-Steele
8-week Project Goals
The final report on the Community Needs Assessment Project in conjunction with my primary mentor, AJ Alejano-Steele.
LCHT has conducted community needs assessments related to human trafficking in five Colorado communities including Denver, Colorado Springs, Fort Collins, Englewood, and Boulder.  The research is designed to assess current levels of knowledge surrounding human trafficking to guide leaders in the field in future service provision, training, technical assistance and coalition-building activities.
Very Brief Background or Rationale of Project:  Ssubset of the data from the Community Needs Assessment Project and preparing a PowerPoint presentation. Specifically, I will analyze responses of health care providers in the community and summarize the current levels of knowledge of and/or experience with individuals affected by human trafficking. I will then make recommendations on how health care providers can effectively respond to victims of human trafficking.

 Metro Denver Bright Beginnings - “Survey compilation and program evaluation”

Sammie Roberts
LEADS Faculty Mentor:  Steve Federico                                       Organization Mentor:  Amy Slaughter
8-week Project Goals:
Importance of positive parent-child relationships in raising children to be healthy, productive adults. Powerful role of education in influencing healthy lifestyle, starting in childhood. 
The ability of this organization to provide positive beginnings for the children of Colorado, and will allow to become more familiar with early childhood development.
Very Brief Background or Rationale of Project
VI.          The goal of this project is to assess what effect Colorado Bright Beginnings' parent education materials have on the lives of parents and children in Colorado who have received these materials. Areas to be assessed include the amount of time parents spend reading and playing with their children, children's health habits including amount of time spent playing outdoors versus engaging with media and elements of dietary intake, and children's current and past health insurance status. The overarching aim is to determine whether an education/materials distribution model such as that employed by Colorado Bright Beginnings affects a positive change in families who have received these materials. I am in the process of elucidating further applications of this information. The ultimate product will be a paper analyzing the survey data collected, as well as a brief summary of the information in pamphlet form for Colorado Bright Beginnings to distribute to organizations interested in funding their work.

 United Way - “2-1-1 Smart Phone Application”

Diana Tsen
LEADS Faculty Mentor: Jeremy Long                                                                        Organization Mentor:  
8-week Project Goals: 
 2-1-1 is a social services referral hotline whose database is organized in such a way that makes it very difficult to search as a layperson user. We wish to streamline the database in a manner that makes the search experience more user-friendly for clients and physicians so the resources database can be utilized by more members of the community.
Very Brief Background or Rationale of Project: 
Using Microsoft InfoPath Designer, create and pilot new form for gathering information on service profiles from agencies. Work out logistics on back-end with VisionLink to see how this data entry can be synced with the existing database software

 Urban Peak - “Health Care preferences of homeless adolescents”

Ethan Rosenberg
LEADS Faculty Mentor: Christine Gilroy                                              Organization Mentor:  Lorrie Park
8-week Project Goals:
Emergency department (ED) use among homeless adults is a costly, prevalent, and poorly understood problem.  ED use in runaway and homeless youth (RHY) is less studied. Given policy and programming concerns about over—and under—use of emergency services, the associated longitudinal impacts on housing, and the implementation of the Patient Protection and Affordable Care Act, we undertook a study to document patterns, perceptions, and reasoning behind ED use and associated services among sheltered RHY in an urban setting
Very Brief Background or Rationale of Project:
Providers at Urban Peak clinic have been concerned about the youths' use of the ED for non-emergent situations. Survey will quantify the degree of ED usage and provide some insight as to whether or not the visit was appropriate for the ED. Interviews will provide a better understanding of the belief structure of youth concerning the ED and the health care system. The class curriculum will be fluid and focus on the downside of using the ED for non-emergent reasons as well as provide resources for free/less expensive care.