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Inherited Metabolic Diseases Nutrition Department

Nutrition management for children and adults with confirmed diagnosis of inborn errors of metabolism


Sommer Myers-Gaughan, Laurie Bernstein, Casey
Sommer Myers-Gaughan, Laurie Bernstein, Casey Burns

The Inherited Metabolic Diseases (IMD) clinic is comprised of a multidisciplinary staff, internationally recognized for their expertise in relation to the diagnosis and treatment of various metabolic disorders. 


The IMD nutrition clinic includes three metabolic nutritionists and is the only clinic in the Rocky Mountain Region providing comprehensive metabolic nutrition services.


Nutritional services provided at the IMD nutrition clinic include follow-up of abnormal newborn screening results, nutritional management and education for both inpatients and outpatients with inborn errors of metabolism (IEMs).

 
Everybody Has Something
Inherited Metabolic Diseases: Visual Aids - A Visual Overview of Metabolic Disorders
Galactosemia: Making Healthy Choices
Galactosemia: Making Healthy Choices Activity Book
Galactosemia: Making Healthy Choices Cookbook
Mile High Low Protein Cooking
PKU Adventure Game - A fun learning game used to assess and increase knowledge of PKU
More Phe More Choices: Think Healthy!
MCT Procal – IMaginative ReCipe Tools

LOCATION

The Low Protein Food Store is located in:

Children's Hospital Colorado
Outpatient Pavilion, 2nd  Floor
Room # B2102
13123 East 16th Avenue
Aurora, Colorado 80045

Store Telephone: (720) 777-9811

Hours of Operation:
Monday: 10:00 am - 12:00 pm
Wednesday: 1:30 pm - 3:30 pm (flexible)
Thursday: 10:00 am - 12:00 pm


ORDERS

To place an order, please call:
(303) 724-2362 or (303) 724-2338

 

NETWORK PKU

What is Network PKU?

Network PKU is an award winning program developed by Children's Hospital Colorado, led by Laurie Bernstein, MS, RD, FADA.

Educational Video

Network PKU was designed as an educational video to increase awareness and enhance knowledge about the diet for Phenylketonuria in order to assist adolescents, teens, and adults to maintain a strong 'diet for life' attitude.

Conference
In 2004, Network PKU expanded in concept to become an interactive conference held on the prestigious campus of Johnson & Wales and featuring culinary workshops to enhance low protein cooking skills and reinforce the 'diet for life' attitude. The overwhelming success of this event has now become a reoccurring event, drawing attendees from all over the US.

What is Eat Right Stay Bright?

Eat Right Stay Bright is an anticipatory guidance tool, developed by Children's Hospital Colorado to aid healthcare professionals in the treatment of patients with PKU.

Sections include
:

  1. Clinic Encounter Check Lists
  2. Experiences and Thoughts
  3. Teaching Aids and Handouts
  4. Resources 

To download all of the chapters, click here 

 

How to use the Eat Right Stay Bright tool

Now there's a webinar that demonstrates how to use the Eat Right Stay Bright tool with your PKU patients and their families.

To view the Eat Right Stay Bright webinar at Metabolic Partners, click here 

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