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Additional Resources

While there is a lot of good information accessible through the internet, there is also information on the internet that is not accurate, so the source of information to be reliable, really matters. In addition, we also know that families can benefit in many ways from connecting with each other and hearing each other’s stories.  Below are some reliable and family connecting resources to share:

Contact Us

We would love to hear to hear from you, so please reach out and contact us!  
For general information and learn more about our current research opportunities, contact:
eXtraordinarY Kids Clinic
Children’s Hospital Colorado
13123 East 16th Ave, B140 
Aurora, CO 80045 
For genetic counseling (prenatal or pediatric) and clinic appointments, contact:
Susan Howell MS, CGC, MBA
Genetic Counselor & Clinic Coordinator
(720) 777-8361