Caregivers can experience the same, if not more, distress than the survivors themselves and are usually less likely than survivors to get the help they need. The following websites provide information and support specifically for caregivers.
The National Bone Marrow Transplant Link offers a publication called The Caregiver’s Guide for Bone Marrow/Stem Cell Transplant ~ Practical Perspectives.
Use link below to access an online copy free of charge:
The Blood & Marrow Transplant Information Network was created by a bone marrow transplant survivor as a place to turn to for accurate and easy-to-understand information. They offer two books written by caregivers of transplant patients.
It’s Good to Know a Miracle: Dani’s Story by Naomi L. Zikmund – Fisher
Across the Chasm: A Caregiver’s Story by Jay & Sue Shotel
Caring Bridge enables caregivers to create a free website to update loved ones on the patient’s progress using one central location for information. It also allows family and friends to send messages of encouragement.
Lotsa Helping Hands is a website that caregivers and patients can use to help organize volunteers for assistance with care. Creating a Help Calendar enables friends and family to schedule and sign up for tasks to provide breaks for caregivers.