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Research Screening Study

The Population-based Palliative Care Research Network


Citation: Casarett, D, Kassner CT, Kutner JS. Recruiting for research in hospice: feasibility of a research screening protocol.  Submitted, Journal of Palliative Medicine. December 2003.

ABSTRACT FOR “RESEARCH SCREENING STUDY”

 

BACKGROUND:  The growth of palliative care research has been limited by challenges of slow recruitment and underenrollment.  One potential solution to this problem is the use of screening questions, embedded in clinical data collection, which identify patients who are interested in participating in research and who can then be approached directly.  The goal of this study was to evaluate the feasibility of this strategy for identifying hospice patients who are interested in research participation.

METHODS: Three screening questions (for survey-based research, clinical trials and family-focused research) were integrated into the intake process of two community-based hospice organizations.

RESULTS:  Data are available on 214 patients.  Of those who were able to respond, 54% indicated willingness to be approached about survey-based research, 40% regarding clinical trials and 65% for family-focused research.

CONCLUSIONS:  These results suggest that screening questions may be useful in identifying hospice patients who are willing to be recruited for research.  Further study is needed to define the likelihood that these patients will consent and whether these screening questions introduce selection bias in the recruitment process.


If you have questions regarding this study, please contact Dr. Jean Kutner