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Helpful Links

The Population-based Palliative Care Research Network


Disclaimer: Links to Internet resources outside of the University of Colorado Denver (UCD) World Wide Web site are provided solely for the convenience of those visiting the UCD network of Home Pages. Provision of such links should not be construed as an endorsement of any or all outside sites linked from the UCD servers.

  • American Academy of Hospice and Palliative Medicine
  • Edmonton Palliative Care Program
  • European Association for Palliative Care (EAPC)
  • Growthhouse
  • National Hospice & Palliative Care Organization
  • National Hospice Foundation
  •  

    Additional Links A - Z

    Agency for Healthcare Research and Quality
    AHRQ is the lead agency charged with supporting research designd to improve the quality of health care, reduce its cost, and broaden access to essential services.

    American College of Physicians-American Society of Internal Medicine
    ACP-ASIM is a medical specialty society designed to enhance the quality and effectiveness of health care by fostering excellence ad professionalism in the practice of medicine.

    American Geriatrics Society
    AGS is a professional organization of health care providers dedicated to improving and effecting change for the health and well being of all older adults.

    American Hospice Foundation
    Site offers numerous full text articles on hospice care and bereavement as well as information on substantive publications and in-house training program, which are available through the organization. A good list of related links to lesser-known sites is available.

    American Hospital Association Circle of Life Award
    Presented annually recognizing outstanding initiatives to improve end-of-life care.

    American Medical Association
    The AMA is a membership organization of physicians. It serves as the patient's adovocate, sets standards for the profession of medicine, medical education, policy matters, and much more.

    American Medical Directors Association White Paper on Hospice in Long Term Care

    American Pain Society
    APS is a non-profit multidisciplinary educational and scientific organization dedicated to serving people in pain, through research, education, treatment, and professional practice.

    American Society for Bioethics and Humanities
    ASBH is a professional society of individuals, organizations, and institutions interested in bioethics and humanities.

    American Society of Law, Medicine, and Ethics
    ASLME provides high-quality scholarship, debate, and critical thought to the community of professionals at the intersection of law, healthcare, policy, and ethics.

    Americans for Better Care of the Dying
    ABCD is a non-profit coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with fatal illness.

    Bioethics Resources on the Web

    Canadian Standards of Hospice Palliative Nursing Care

    Cancer Net
    Cancer Net is a wide range of accurate, credible cancer information from the National Cancer Institute. The comprehensive cancer database includes summaries on cancer treatment, screening, prevention, and supportive care as well as information on ongoing clinical trials.

    Caregiver Network
    Based in Toronto, Canada, the goal of CNI is to be a national single information source to make your life as a caregiver easier.

    Center to Advance Palliative Care (CAPC)
    Caregiving is becoming a significant issue for many people. This resource provides help to others to cope with the demands of caregiving.

    Center to Improve Care of the Dying
    CICD is an interdisciplinary team of committed individuals, engaged in research, public advocacy, and education activities to improve the care of the dying and their families.

    Department of Health and Human Services, Healthfinder
    Healthfinder is a consumer health and human services information web site, which can lead you to selected online publications, web sites, and not-for-profit organizations

    Dying Well
    Defining wellness through the 'End of Life': Resources for patients and families facing life-limiting illness.

    EDELE- Epidemiology of Dying & End-of-Life experience
    This online, searchable catalogue helps you quickly find public data about decedents and care at the end of life.

    Education for Physicians on End-of-Life Care (EPEC)
    Educates physicians, through its core curriculum, on essential clinical competencies required to provide quality end-of-life care.

    Eldercare Web
    Eldercare Web is a collection of reviewed links to on-line information about health, financing, housing, and other issues related to the care of the frail elderly.

    Elisabeth Kubler-Ross, M.D.
    Author of "On Death and Dying." Interview with Dr. Daniel Redwood.

    End-of-Life Nursing Education Consortium (ELNEC)
    A comprehensive national education program to develop a core of expert nursing educators and to coordinate national nursing efforts in end-of-life care topic areas and educational formats.

    End-of-Life Physician Education Resource Center (EPERC)
    Assists physician educators and others in locating high-quality, peer-reviewed training materials with educational materials indexed by end-of-life care topic areas and eductional formats.

    Grief Guides
    From the National Hospice and Palliative Care Organization.

    Harvard Medical School Center for Palliative Care

    Hemlock Society USA and PRO-USA
    For those who support the rights of the terminally ill to choose death with dignity, who support personal control and autonomy in end-of-life decisions, and who believe that laws should allow a terminally ill person the choice of medical assistance in hastening their death.

    Hospice Education Institute
    Serves individuals and organizations interested in improving and expanding hospice and palliative care throughout the states and around the world.

    Hospice Foundation of America
    Offers a range of publications for professionals and the public.

    Hospice and Palliative Nurse Association (HPNA)
    This is the official site of the Hospice and Palliative Nurse Association (HPNA).

    Inventory and Evaluations of Clinical Research Networks (IECRN)
    Funded by the NIH Roadmap for Medical Research, this organization provides profiles of clinical research networks. The network profiles are summaries of descriptive information about the networks, such as types of studies, funding source, participating entities and special populations.

    Innovations in End of Life Care
    Bi-monthly online journal that focuses on innovative projects in EOL care.

    Institute of Human Values in Health Care
    The Medical University of South Carolina; multiple links to helpful organizations regarding end-of-life care.

    International Association for Hospice and Palliative Care

    International Association for the Study of Pain
    IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists, and other health professionals actively engaged in pain research and to those who have an interest in the treatment of pain.

    Medical College of Wisconsin Palliative Care Program
    This program is committed to improving care for the dying in America through the development, implementation and dissemination of innovative educational and clinical care programs.

    Memorial Sloan Kettering Cancer Center
    Memorial Sloan-Kettering Cancer Center's web site provides a wide range of information for medical professionals, patients, their families, and the general public.

    Midwest Bioethics Center- Caring Conversations
    Caring Conversations is a consumer education initiative that helps individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions.

    National Alliance for Caregtiving (NAC)

    The National Alliance for Children with Life-Threatening Conditions (NACWLTC)

    National Association for Home Care (NAHC)
    NAHC is committed to serving the home care and hospice industry, which provides services to the sick, the disabled, and the terminally ill in the comfort of their homes.

    National Center for Complementary and Alternative Medicine (NCCAM)

    The National Center for Health Statistics
    NCHS provides statistical information that will guide actions and policies to improve the health of the American people.

    National Family Caregivers Association
    NFCA is predicated on the belief that caregivers that choose to take charge of their lives, and seeing caregiving as but one of its facets, are in a position to be happier and healthier individuals.

    The Nathan Cummings Foundation
    The Nathan Cummings Foundation seeks to build a society that values nature and protects ecological balance for future generations; promotes humane health care; and fosters arts to enrich communities.

    The National Institute on Aging
    NIA promotes health aging by conducting and supporting biomedical, social, and behavioral research and public education.

    National Prison Hospice Association (NPHA)

    Not Dead Yet
    Americans with Disabilities want freedom and life.

    Office of Academic Affiliations: Hospice and Palliative Care
    Comprehensive bibliography, part of the VA Library on End-of-Life Care. Updated Monthly.

    OncoLink
    The University of Pennsylvania Cancer Center provides easy access to a wide variety of cancer resources including current clinical trials, financial issues for patients and more.

    Oregon Health Sciences University Center for Ethics in Health Care
    The Center for Ethics combines the perspectives of health professionals, patients, and families to improve teaching, research, and clinical consultation about ethical issues in patient care and health policy.

    Palliative Care Virtual Library, UCLA
    Good resources for patients and health care providers.

    Pediatric Pain
    This site provides professional, research, and self-help resources for health care workers, researchers, and parents caring for children in pain.

    Promoting Excellence in End-of-Life Care
    This site provides professional, research, and self-help resources for health care workers, researchers, and parents caring for children in pain.

    Quality-of-Life Assessment in Palliative Care
    Article

    RAND Center to Improve Care of the Dying
    The center conducts research designed to improve a system of care in which persons with serious and eventually fatal chronic illness can live comfortably and meaningfully until death.

    Resources for Older People
    This serves older people and their families, health and legal professionals, social service providers, and others with an interest in the field of aging. From the Administration on Aging website of the U.S. Department of Health & Human Services.

    Robert Wood Johnson Foundation
    RWJ is the nation's largest philanthropy devoted exclusively to health and health care, and has made more than $2 billion in grants.

    Supportive Care of the Dying

    Symptom Research

    UB Center for Clinical Ethics and Humanities in Health Care
    The Center for Clinical Ethics and Humanities in Health Care is an interdisciplinary academic center which draws upon a wide range of individuals from the School of Medicine and Biomedical Sciences as well as various health care and academic institutions.

    UW Pain and Policy Studies Group
    The UW Pain and Policy Studies Group is the study of public policy in relation to pain management, identifying and addressing the barriers to medical use of opioid analgesics.

    VA Nationwide Palliative Care Network