Medical professionals treating patients who are diagnosed with a bleeding or clotting disorder need specialized resources to properly provide updated information to patients. Many resources exist throughout the broad sphere of the medical community and the internet. We have compiled a few that we have found especially helpful, reliable and educational that providers can use as resources to supplement their knowledge in providing care for their patients.
MedlinePlus is a resource created by the U.S. National Library of medicine and the National Institutes of Health. Searchable by topic, providing news, videos, and information this site is a reliable and up to date resource on many topics, including bleeding and clotting disorders.
The Centers for Disease Control and Prevention (CDC)
Hemophilia and Thrombosis Centers are located throughout the United States to provide specialized care to patients. If patients are located in rural areas, not near an HTC, or traveling the CDC provides a resource to search for the closest center to find care.
Their site explains the HTC model, and has many resources explaining many blood disorders. The CDC also has resources such as Webinars on Blood Disorders, details on many topics and visuals available for use.
The National Heart, Lung and Blood Institute (NHLBI)
The National Heart, Lung, and Blood Institute has detailed information on bleeding and clotting disorders, diseases and a wealth of information to assist both provider and patient. They have an entire section dedicated for Health Professionals, providing publications, resources and
Our HTC often is involved in research, however national trials may be going on throughout the country on a variety of bleeding or clotting disorders. To find out more, use this searchable site at ClinicalTrials.gov.
The National Hemophilia Foundation
The National Hemophilia Foundation has many resources, including news, an online bleeding disorder magazine, details on national meetings, local chapters to provide support, a section specifically for healthcare professionals, genetic testing opportunities, advocacy, up to date information on treatments and medications and more.
In addition, the NHF has recently updated their “Nurses’ Guide to Bleeding Disorders”, which is available online. Members of our HTC contributed to the information in this guide that was prepared under the supervision of the NHF’s Nursing Working Group and is designed to assist both new and experienced nurses working with bleeding disorders.
Medscape is offering online learning opportunities such as this one, providing clinicians information on both current and emerging treatments for hemophilia from experts in the field. Registration for these online resources is through Medscape and free of charge.