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University of Colorado Denver

Centers for American Indian and Alaska Native Health
 
 
 

NCAIANMHR

Native Elders, Dementia, and Family Caregiving


PROJECT TITLE:
Native Elders, Dementia, and Family Caregiving 

FUNDING SOURCE: 
National Institute of Aging

DATES OF FUNDING: 
2001-2006

PRINCIPAL INVESTIGATOR(S): 
Lori L. Jervis, Ph.D.

CENTER STAFF INVOLVED:
Lori L. Jervis, Ph.D., Spero M. Manson, Ph.D. 

 

SPECIFIC AIMS/RESEARCH GOALS:

This study has 3 Specific Aims:

  1. to explore the cultural phenomenology of cognitive impairment within an American Indian community,
  2. to test the acceptability and validity of a culturally modified dementia evaluation among Native elders, and
  3. to examine family caregiving for older Natives with dementia, both its burdens and its gratifications.


RESEARCH DESIGN:
  1. Focus groups with Native elders, family caregivers, and health/social services providers to assess and modify measures for cultural relevance,
  2. Interviews with 150 Native elders and 40 caregivers.   Along with structured measures, each interview has a semi-structured component designed to explore people’s experiences and the meanings they assign to them.

 

PARTICIPANTS:

Elders who are clients of a senior nutrition program on a Northern Plains reservation and their family caregivers.

 

MEASURES:
Elder Interview:
  1. Selected questions from AI-SUPERPFP's demographic module
  2. Mini-Mental State Examination (MMSE)
  3. Mattis Dementia Rating Scale (MDRS)
  4. Caregiver Screener
  5. Debriefing Questions
  6. Semi-Structured Interview Guide

CAREGIVER INTERVIEW:
  1. Selected questions from AI-SUPERPFP's demographic module
  2. Semi-Structured Interview Guide
  3. Burden Interview
  4. Picot Caregiver Reward Scale

 

PUBLICATIONS:

Data collection for this project has not yet begun.

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